Technology and scientific advancements open the door to a plethora of genetic tests for a variety of conditions. However, ethical standards have not necessarily been established to guide health organizations in offering genetic testing services, in contracting with certain providers of genetic test kits/lab process, and in explaining the results to the patient/consumer. Draw from the readings, outside research and the AHRQ specific list of tests to identify and discuss with your colleagues a specific important issue for health care organizations as they consider their role in genetic testing. Remember the discussions related to standards of care, patient confidentiality, and evidence-based care.
Background sites to read
- http://www.eeoc.gov/laws/types/genetic.cfm [patient privacy and genetic testing]
- http://www.ache.org/ABT_ACHE/code.cfm and http://www.ache.org/ [standards for ethical behavior among health care executives]
- http://ccn.aacnjournals.org/content/25/1/38.full.pdf&embedded=true [Teaching Clinical Ethics Using a Case Study Family Presence During Cardiopulmonary Resuscitation]
- http://www.ncbi.nlm.nih.gov/pmc/articles /PMC1449188/ [Health Care Policy Issues as a Result of the Genetic Revolution: Implications for Public Health]
- http://www.who.int/genomics/policy/quality_safety/en/ [Quality & Safety in Genetic Testing: An Emerging Concern]